Who? Us?

We are two disabled, oldish women who have been adventuring through life for years. We are talking about how disabilities, both visible and not, change the way we enjoy our retirement.

Saturday, July 25, 2015

Chronic Fatigue Affects the Entire Household

Living with Someone Who has Chronic Fatigue Syndrome.

It’s interesting, to say the least, to live with a person who suffers from Chronic Fatigue Syndrome. Oh, and by the way, it’s usually accompanied by Fibromyalgia and often other auto-immune system problems.

The syndrome is properly named. The person with Chronic Fatigue is tired all the time. Not just the tired you are after running a marathon or climbing Mt Everest, but the fatigue that is so disabling that getting out of bed is a major undertaking. 

Someone with Chronic Fatigue needs 12 to 18 hours of sleep every day. And just powering through it is not possible. So, to bed by 10p, sleep until noon, take a nap at 3 until 7p and then up for 3 hours maybe.  And that’s on a good day.

I feel so sorry for Donna. She is a doer and has been all of her life. Just think, she started grad school in Social Work in her 40s, did her internship and started a successful private practice when she was almost 50.  She continued practicing even after her symptoms appeared, scheduling her clients for her awake times. 

She did what she did in chronic pain from the fibromyalgia.  It was painful to watch her apply various topical ointments to joints so she could sit or stand without collapsing.  All the while not complaining.

These syndromes were kickstarted after Hurricane Katrina decided to blow our house down. That story one of these days.

Chronic Fatigue and Fibro are cyclical, so Donna is her old self once in awhile. She gets more done in one day then than most people do in a week. I stand in awe of her accomplishments.  

Soon, you will hear directly from her of her daily difficulties, but she is in a down cycle right now, needing as much sleep as she can get.

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